Named after Richard K.

Olney was founder and director of the ALS Treatment and Analysis Center at the University of California-San Francisco before he was diagnosed with ALS in 2004 and switched over the reins to Catherine Lomen-Hoerth, MD, PhD. Lomen-Hoerth was Olney’s former pupil who went on to become his doctor. It’ll be inspirational for the recipient of the award to listen to about his life and strive to adhere to in his footsteps, said Lomen-Hoerth, who’s a past recipient of an American Academy of Neurology Foundation clinical research schooling fellowship. As a recipient myself of a scientific research training fellowship previously, it was an important springboard for me personally to enter the field of ALS research.The first sign of CCHS appears just after birth, when affected infants will turn blue if they sleep, as their breathing becomes very shallow or stops actually. Severely affected babies can change blue while awake also. But now that CCHS is even more widely recognized, individuals are being recognized in the newborn period with better frequency. Those that were ‘missed’ in early infancy and who have a milder demonstration are now identified in later childhood and also into adulthood. ‘They usually have a history of turning blue after getting sedation, anesthesia or anti-seizure meds,’ described Dr. Weese-Mayer. ‘They also may have exceptional skill at underwater swimming or breath-holding . Many later-presenting cases shall possess unexplained neurocognitive delay.’ Afflicted people generally require fastidious medical supervision to achieve the finest quality of life.